She moved from Namakkal to the state capital of Chennai with her uncle in 1997. Here, she joined an initiative called INP Plus (Indian Network for Positive People Plus) which disseminated information about HIV/AIDS. When INP Plus opened a separate wing for women and children PWN (Positive Women s Network) Plus Kousalya was chosen to helm it.
Even though HIV-infected people in India were ostracised as untouchables at that time, Kousalya acknowledged that she was HIV-positive and emerged as a national hero. She spoke at length about her predicament. She even let herself be photographed.
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PWN Plus that was launched in 1998 with just four founding members grew exponentially. It found a resonance amongst thousands of women living with HIV/AIDS (WLHA) who were living with the scars of a stigma and discrimination. To augment the quality of life for WLHA and their children in India at the macro and micro level, PWN Plus started working in synergy with state organisations.
The outfit gradually extended its reach across the globe by tying up with UNAIDS (Joint United Nations Programme on HIV and AIDS), UNDP (United Nations Development Program), UNIFEM (United Nations Development Fund for Women) and the Commonwealth.
Today, elaborates Kousalya, we have 14 state networks in Tamil Nadu, Kerala, Andhra Pradesh, Delhi, Rajastan, Manipur, Pondicherry, Karnataka, Maharashtra, Mizoram, Madhya Pradesh, Haryana, Uttar Pradesh and Orissa. Our networks in five states like Maharashtra, Mizoram, Manipur, Pondicherry and Haryana are operating without any external support or funding.
Padmavati, 34, infected by her husband came to PWN for legal help in a property case. She was a wreck and could barely communicate her problem to the volunteers. While interacting with the network s staff, however, she got interested in their work. She joined as a trainee in 1999.
Today, she is the president of the PWN network in Tamil Nadu, confidently travels on work, attending seminars, organising workshops and advising women about their rights. Joining the network has been a life-altering experience for me, says Padmavati.
As president of PWN Plus, Kousalya frequently travels in India and abroad playing multifarious roles of activist, counselor and speaker on HIV and AIDS issues. She speaks fluent English and adroitly handles journalistic enquiries. I have addressed the Indian Parliament (2000) about the problems of HIV-positive people, spoken at the British Parliament (2004), had interactions with erstwhile president Dr A.P.J. Abdul Kalam (2006), U.N. Secretary General Kofi Annan (2006) and with Congress President Sonia Gandhi (2006), she says with pride.
Most HIV and AIDS programmes in the country are aimed at prevention rather than treatment and rehabilitation, says Kousalya. These programmes primarily target high-risk segments of society, such as commercial sex workers and truck drivers. We need to have a rights-based approach for women and children who are at risk, she asserts.
This is a judicious approach considering India currently hosts 2.4 million HIV-positive people. Of these, an estimated 39 percent are female and 3.5 percent children. According to Union Minister for Health, Ghulam Nabi Azad, around 90 percent of all children living with HIV acquired the infection from their mothers during pregnancy, birth or breastfeeding.
Thus PWN Plus PPCT (Prevention of Parent to Child Transmission) initiatives addresses this demographic by stationing volunteers across 21 districts in five states. These volunteers act as watchdogs and report cases of discrimination by healthcare givers and advise pregnant women.
While addressing the children, according to Kousalya, the HIV/AIDS interface call for a multi- pronged approach. More so because the situation in large swaths of the country is truly alarming. In states like Nagaland, Manipur, Tamil Nadu, Andhra Pradesh and Maharashtra, she says, children are routinely turned away from orphanages, educational institutes and hospitals because they or their family members are HIV-positive.
While focusing so much on kids, does the crusader regret not having any of her own? Life is too short for regrets, she says. I ve made a name for myself because I am HIV positive. I consider this an advantage. Else, I may well have died unsung in Namakkal!
